Circle City Communities

Sleepdesk Problems Forum (Page 1)

Please reply to anyone you can help or give advice!
I'm a wreck through lack of sleep

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Posted by: Eddy
Location: Newcastle
Date: Wednesday 25th January 2012 at 9:32 AM
I have had some problems with sleep over the last few years. I sleepwalk when I am stressed and do mad things (once.I tried to drive my wife's car, I don't have a licence...)
Currently I seem to have settled a bit, but my problem now is that once I am asleep, nothing will wake me up at all. If my kids wake in the night and my wife needs help then she tries to wake me but all she gets is a shower of abuse from me that I don't recall in the morning.
Has anyone else had this problem or have any ideas how to train my brain to stop being so nasty?
Cheers,
Ed



Posted by: Julieann
Location: Newcastle
Date: Tuesday 3rd January 2012 at 8:31 PM
Hi i have a 6 year old daughter who is scared to go to sleep and wakes everyone up all night she keeps asking when it is morning,but i dont understand as most times she dont remember anything but she looks awake but cant tell me whats wrong i have been to my doctors who 2 months ago sent a letter to hospital still nothing,can anyone help me as now its about 5 times a night and she looks like she has lost weight in the past 2 weeks and this is the period that its getting bad.



Posted by: Laurenlib
Location: London
Date: Thursday 20th October 2011 at 5:29 PM
Hello, I'm writing a piece for a national newspaper about a sleep disorder called sexsomnia - where you have sex with someone while you're asleep without realising it. It's a serious piece, uncovering why it happens and the treatments available and I'm looking for case studies who are willing to talk about it. If this relates to you, please email me at (lauren.libbert at mac dot com). Thank you.



Posted by: Peter
Location: Queens Ny
Date: Monday 22nd August 2011 at 4:07 AM
I market a product for people who have trouble sleeping through the night, like I used to. Do you know anyone who might like to know about a product like that? www.patchtrainingteam.com/peterchristian. www.lifewave.com/petertheresa



Posted by: Hol
Location: Rotherham
Date: Monday 4th July 2011 at 10:47 AM
I am 25 years old and suffer with anxiety/stress and sleeping problems on and off for the last 5 years. I have recently been prescribed Zopiclone from my GP for the 2nd time. The 1st time they worked wonders and got me back into my sleeping pattern after 4 weeks. This time they worked well for the first two weeks but have recently been waking up in the night shouting/screaming with no recollection why. Also 2 nights ago i woke up to see a man in a white coat stood at my bedroom door, as i moved closer he faded away but i noticed he had the face of my late grandad... i then noticed a lady with an african head dress floating up and down in my hallway. Has onyone else suffered hallucinations from Zopiclone? I am now afraid to continue taking them as i found the hallucinations so disturbing.



Posted by: Steve
Location: Leeds
Date: Saturday 2nd April 2011 at 4:47 PM
Only been using my ResMed S8 escape II six week and all I get is a compliance user menu. How long I have been using it for in hours and how many days I have used it. I have had four masks and now testing ResMed mirage FX.
My pressure as been set at 9.6cm H2O. Iam still feeling sleepy on a morning and tired. Can I get some reading material and stats of what I should be aimming for. I would like t access the clinic menu on this machine to set up a database to monitor progress. Hospital said they would call me in six months and get a progress report. Then would see me in 12 months. Is this the norm or is it the exception. I hate being so usless.



Posted by: Katarina
Location: Swansea
Date: Monday 21st March 2011 at 11:40 PM
My son is 14 years old, with cerebral palsy, autism and severe learning difficulties. He had always problems to sleep. He wakes up several times a night, 2-10x a night, usually the first half of the night. He has no problem falling to sleep, but starts crying about half an hour later and then maybe every 15-30 minutes until 1-2 o'clock. When he cries, his eyes are shut, he is uncosoleable, usually sits on the bed, rubs his eyes or rocks back and forth. Sometimes he kicks his legs rapidly, like drumming and kicks off the blanket. He recently started without the nappy in the night, so he can wet himself during this period. When he starts crying, I take him usually to the toilet.
I read about night terrors, it looks like them or sudden arrousals,but I was also weondering about seizures. Does anyone have similar experience, what do you do? Why so many times a night? He was put on equasym 3 weeks ago and the sleep is much worse.



Posted by: Snykboss
Location: Cambridgeshire England
Date: Tuesday 11th January 2011 at 5:28 AM
So I have just woke up from 6 different episodes from sleep paralysis, and because I have mental conditions, Remembered each one and about to get help from my nearest doctor, But first I will tell you and can someone respond if they have had the same dream as my next door neighbors (Both side's) Had this as well!, So first occurrence to my knowledge was at 3:00AM When I started Rapid Eye Movement (As recorded by my security camera's), I entered a night terror and heres what happened: (Text in brackets is me explaining, Not a part of the dream
Got out of bed entire room was empty - (This never woke me up, My in-nightmare self kept walking).
Walked in to the hallway where my 9 month old was out in a baby bouncer and not looking to good (At this point a threat came in, The videos show me holding my scalp and pulling it hard in a hope that it would end)
I was screaming as this came into a more worse situation where a blue glowing man around 16 came up to me - (Footage shows me screaming with no voice just a reaction of my mouth)
The man just stop there, Then said he was "Alan, Son of Allah, He the Royale one shall be the decider of the death hour" (I Screamed and woke everyone up)
I jumped down the stairs and noticed our two labradors were not there, and the doors were open (I was sitting up, Eyes still in Rapid Movement and i was breathing heavy)
The living room was empty and bare with floor boards down instead of carpet, and clear light from the windows, I jumped as hard as i could (This ended the nightmare and entered me into a Lucid dream)

The son of allah was knocking at the window, I died (This entered me in to a lot of paralysis episodes, I will only only say one)

On the floor next to the local primary school with a tile smashed on my head blood going everywhere (This has already happened but on purpose, I was in a movie called on that day as a college project around 10 years back)

http://www.youtube.com/watch?v=T6YOwq7ZYfM - A simulation of the last dream from my college project, Respond by posting a new message if you have had similar



Posted by: Sammy
Location: Leeds Uk
Date: Monday 27th December 2010 at 8:48 AM
PLEASE HELP FILL IN THIS SLEEP PROBLEMS QUESTIONNAIRE :)

Hey everyone,

So I'm doing a final year product design project at university in leeds on sleep problems and would really appreciate any information you have on sleep problems so that I can design a product to hopefully tackle some of the problems!

It only takes 5mins and I would really appreciate it :)

Here's the link:

http://www.surveymonkey.com/s/help-overcome-sleep-problems

Many thanks,

Sammy :)



Posted by: Krissy
Location: Kingswinford West Mids
Date: Friday 15th October 2010 at 11:12 AM
Hello. Over the last 6 years I have suffered episodes of sleep paralysis. Always in the early hours of the morning. I cannot move or speak. I have always felt that there is a man watching over me the first time I thought this was the shadow of my husband's father who had passed away. I have always felt terrified. This morning though for the 1st time it was a child. A little boy that I felt climb onto the bed next to me he spoke but I had my back to him. I though It may of been my foster son by the time I had turned around there was no one there. I also have feelings like I'm being pulled through the bed & there is great pressure on my body. Most alarmingly though are the sounds in my head. They are like loud static, radio sounds , sometime with muffled voices. These scare me the most. I'm am fully aware of my surroundings & for instance could tell you what was on the TV if it had been left on. I have learnt not to fight to wake myself up . This morning I was so conscience that I considered letting the feeling overwhelmed me to see what happened. But fear of the noises 36003000000000over took me and I willed my fingers to move this woke me up. So here I am looking to find out if anyone else experiences the same ?
Reply from: Snykboss
Date: Tuesday 11th January 2011 at 5:31 AM

One similar experience, but no one passed in our family, I just see a glowing blue man who has been trying to murder me mentally for 13 years ever since the stages of when i was 9.



Posted by: Mimi
Location: Salisbury
Date: Tuesday 28th September 2010 at 8:41 PM
Hi, This is the 1st time i've posted on here so apologies if i do anything wrong!

I have a 3 year old daughter who has suffered with classic Night Terrors for the best part of 18 months. We have not been unduly concerned until a couple of nights ago she woke up at 1am screaming hysterically thinking she was covered in ants and that her bed was crawling with ants. I managed to calm her down but the 'hallucination' went on for over 2 hours. During this time she used the bathroom, had a glass of water and had conversations with me about her previous day at nursery, not normal during a night terror. Anyone have any experience of this, any advice?



Posted by: Ivy
Location: Scotland
Date: Tuesday 21st September 2010 at 10:21 AM
Hi,
does anyone know the normal range of % stage 1, 2, 3, 4 and REM for healthy sleepers in their 30s?
Thanks.



Posted by: Motorman
Location: Durham
Date: Tuesday 14th September 2010 at 10:56 PM
Hi just found this site very intresting just want to no if you can give me advice i have had obstructive sleep apneoa now for 5 yrs finding it verry hard i am curently on c p a p humidified with a full face mask and high presure of 14cm im also on 400 mg of modafinil a day. i have also had my driving liscence revoked i am still having lots of problems with sleep and c p a p Sad :i was wondering and would realy realy consider having a tube trackey put in my throat so i can get my quality of life back and my liscence. i am 47 yrs old and all i want is some quality life back to were i used to be. dose anyone no iff this is possible anywere in uk were i could get tis done thanks
Reply from: Bob
Date: Wednesday 15th September 2010 at 12:00 AM

Hi Motorman,
I've had that done due to me not being able to cope with the high pressure I needed with a cpap.
See this page:-
http://www.circlecity.co.uk/sleepdesk/tracheostomy.php

I went to see my doctor, who sent me to the E.N.T. dept. at Leeds Infirmary. After telling me about a tracheostomy, they decided to do it. But, I was older than you at 56 yrs. I'm now 64.

It is a total cure for O.S.A. and snoring, but there are disadvantages. It needs cleaning regularly or it starts to smell. It has to be changed and this is not pleasant either. I change mine myself.

Discuss it with your doctor, but I think you are still a bit too young for it.

If you can prove to your sleep specialist that your cpap is working for you, they can write to the D.V.L.A. and you should get your driving licence back.
Reply from: Gregg Nelson
Date: Monday 4th October 2010 at 7:42 PM

I had a tracheostomy performed at age 36 in 1983. At that time CPAP hadn't been invented and a tracheostomy was the accepted treatement. It was decided I would need the trach for life so I had a "flap" trach where the opening is lined with skin flaps from the incision so it will never heal. It has been nearly trouble free.

I use a silicone plug during the day and a Montgomery tube at night. Switching is painless. Over time the plug and/or tube can become contaminated with organic matter (saliva, skin bacteria) and produce an odor. Soaking them overnight for a week or two in peroxide takes care of that. I use a plastic 35mm film canister for that and also for storing the plug or tube.

I wear a crew-neck T-shirt to hide the trach from view.

I'd prefer not having a trach but the alternative is far worse. I had two car accidents due to falling asleep at the wheel before my apnea was diagnosed.
Reply from: Nuneatonman37
Date: Friday 7th October 2011 at 9:39 PM

Hi,

Have you ever asked if you have central sleep apnoea ?

If you have central sleep apnoea a trachy would be useless for you - investigate the reasons why cpap is not working for you - eg- Have you tried apap or bi-pap machines ? have you tried other masks .

Look into this before you make any mistakes.

Regards,
Nuneatonman37
Reply from: Amanda F
Date: Thursday 12th January 2012 at 2:34 PM

Please try this too! We are so excited, just had to share!
I am posting this message regarding my partner Steve! I am so amazed at the results! This is changing our lives and more importantly giving Steve his life back. Steve went to the sleep clinic with sleep apnoea. Was told he didn't have it badly enough! So, has had to look for help elsewhere! He has been taking a natural drink now for a few months and the benefits have been huge and one of the most recent benefits is that . . . . . . HE NO LONGER SNORES!. This has been so huge for us, I have not quite believed it, but as the weeks have gone by, so we have realised the implications. The realisation that instead of slowly getting more ill, Steve has his life back!
I recon this has extended his life by 10 years instead of ending it in 10! I also feel better from being able to sleep.
There is nothing to loose here, the drink has a 60 day money back guarantee, Steve & I distribute it now as we have been using it for months now!
But hey, a natural drink that works, no more snoring, no more sleep apnoea, whats not to like guys?
Smile Smile Smile



Posted by: Jeff
Location: Us
Date: Monday 16th August 2010 at 11:18 AM
I've had a total of FIVE sleep studies. The first tested positive for OSA. I was fitted for a CPAP mask and such for the second. During the night I slept for a total of four hours. I woke up and probably could've run a marathon.

However, CPAP therapy didn't work. My air pressure constantly had to be adjusted, I kept pulling off the mask, often times I felt like I was choking and other problems arose. So I had another sleep study done, and this time I tested negative for OSA.

The other two tests showed the same results--entirely negative on the OSA, and yet one night with a CPAP gives me absolutely fantastic rest. I don;t understand it.

I'd like some advice on what to do. I've seen three doctors and one of them diagnosed me with OSA--the other two say I don't have it. I do want to trust their opinion in this, but I also don't give a damn about test results, I care about how I feel and the first night on the CPAP was incredible. Should I request CPAP therapy or just try to cope with my current diagnosis? (which is idiopathic hypersomnia) I'm beginning to think its a pulmonary problem.

By the way, I've been tested for upper airway restriction, narcolepsy, insomnia, etc. None of it was positive.
Reply from: Bob
Date: Monday 16th August 2010 at 11:17 PM

Hi Jeff,
It may be that you're a border-line case, so various doctors rate it differently.

If you stop breathing when you're asleep, you've probably got OSA. The sleep tests would show this up on their recording machine. It's possible some nights that you're ok.

If you have a mild case of OSA, just sleeping in a different position could affect it. I've been told sleeping on your back is supposed to make it worse.

All you can do is tell you're doctor about it, and go with their diagnosis.



Posted by: Gregg Nelson
Location: Bloomington Mn Usa
Date: Friday 2nd July 2010 at 5:24 PM
I was diagnosed with OSA in 1983 at age 36. At that time a tracheostomy was the usual treatment. Mine was performed in Sept 1983. One of the physicians who performed the operation decided to experiment by fitting me for a plug made of ear-mold silicone plastic. It's similar in shape to a Montgomery tube and I wear it during the day. At night I replace the plug with a Montgomery tube. To clean both of organic contaminants I soak them in hydrogen peroxide daily (overnight).

I've had very few problems with the trach during the nearly 30 years I've had it.
I've never used CPAP but I did try one during a followup sleep study.
Reply from: Bob
Date: Saturday 3rd July 2010 at 1:13 PM

Hi Gregg,
I've had a Montgomery tube since 2003 but I'm experiencing difficulty in inserting it after removal. It seems that my throat is overgrowing (to the left and to the right) of the lugs. I constantly keep pushing the tube back, but it works its way forward again.

The last time I renewed it, I had to stick a biro pen down the tube to stop it concertinaing up, and had to push like hell to get it in. There was slight bleeding but nothing much. I use the standard K.Y. jelly to lubricate it, which does help.
Reply from: Gregg Nelson
Date: Monday 5th July 2010 at 5:39 PM

I had what they referred to as a "flap" trach. After they cut the opening they folded flaps of skin into the trach opening and sutured them so there is no raw wound. I can remove or insert my plug or Montgomery tube at any time with very little discomfort. The opening will never heal closed on its own. When I insert the plug or tube I do lubricate the end of the tube and the trach opening with either tap water, or saliva if tap water isn't handy. It can be hard to push in without some lubrication.

I always wash my hands before handling my plug or tube and frequently soak them in peroxide when I wearing the other one.
Reply from: Bob
Date: Monday 5th July 2010 at 7:08 PM

Hi Gregg,
You seem to be far ahead in the U.S.A. with tracheotomy development than in the U.K. I wish mine had been done like that. I suppose I will have to see an E.N.T. specialist to get it sorted out.
Reply from: Kath
Date: Monday 12th July 2010 at 12:51 PM

Hats off to both of you! Now I realize why they say CPAP is the least intrusive treatment for OSA. Yes, it can be uncomfortable and requires working at it to get comfortable treatment, but I hope other CPAP'ers reading your posts will realize CPAP's not so bad after all Smile
Reply from: Steve Uk
Date: Friday 12th November 2010 at 4:23 PM

Hi all, it appears that eveyone seems to have problems with the CPAP machine, it is set in the UK as standard at the 95th percentile of your test results from a home sleep study carried out. After lots of initial problems with the pressure being to low and then to high or the onset of rather painful dry throat in the morning. I have finally found that if you get your machine set for the 97th percentile and not ramped setting. (This can often feel you are trying to pull air from the tube when it is set as on) you feel much mire settled and don't get nervous or that closed in feeling. Also when you wake up the dry throat is almost non existent. CPAP is really not that bad afterall and is a life saver when used correctly. Grin


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